According to information obtained through the RTI Act, AIIMS-Delhi received over ₹23 crore in funding from the Centre for treating rare diseases in the past five years. In total, the Centre has released around ₹90 crore to several Centres of Excellence (CoE) for rare disease treatment since 2019. AIIMS-Delhi received ₹1 crore in 2019, nothing in 2020, ₹4.10 crore in 2021, ₹7.12 crore in 2023, and ₹10.93 crore in 2023. The government has provided financial assistance to patients suffering from various rare diseases, and AIIMS-Delhi treated 22 such patients in 2021 and 12 in 2022. The National Policy for Rare Diseases (NPRD) was launched in March 2021, categorizing the diseases into three groups based on treatment requirements.
